The Society provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly.
The following description of Turner Syndrome (TS) and explanation of some of the issues involved in living with the condition is not definitive and a doctor or endocrine specialist should always be consulted whenever a diagnosis of TS has been given.
It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.
There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs. TS is a ‘cradle to grave’ condition and as such should be treated throughout life in a variety of ways.
Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits. We are also happy to receive donations which enable the TSSS to continue to offer support to those with TS and their families.
It doesn't cost you a penny extra.
When you shop the easyfundraising way with one of our 3,106 shops and sites they give us a commission for your purchase. We turn that into a donation and give it to the TSSS. Easy!
We would like to invite you and your daughter to join the SOAR (Social skills and relationships in Turner Syndrome) study. SOAR aims to improve our understanding of the behaviour, development and wellbeing of girls and women with TS.
We are especially interested in social skills, friendships and relationships as know these areas are of great concern to parents as their daughters grow up.