A team at the University of Glamorgan is now looking for people to participate in a project and to tell their stories.
Are you affected by a genetic condition, either yourself, a family member or a friend?
If you would be willing to tell us your story and share your experiences we would be happy to hear from you.
Or, if you would like to know more about the project, please contact us:
Ms Kalbir Kaur-Mann
School of Care Sciences
University of Glamorgan
Tel: 01443 483 141 or 483 185