• Book for the 2014 conference!

    The Society's 15th annual conference will be held over the weekend of 11 to 13 October 2014 at the Park Hall Hotel, Charnock Richard. Read More
  • Angela Merry Conference

    TSSS invites you to attend The Angela Merry Memorial Conference & Reception, which will bring together the top specialists on TS in the UK. Read More
  • Join a friendship group!

    We now have 12 friendship groups around the UK and Ireland. For information about friendship groups and their activities please click the link. Read More
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  • What is TS?
  • Treatment
  • Living with TS
  • Join or donate

The following description of Turner Syndrome (TS) and explanation of some of the issues involved in living with the condition are not definitive and a doctor or endocrine specialist should always be consulted whenever a diagnosis of Turner syndrome has been given.

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There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs. TS is a ‘cradle to grave’ condition and as such should be treated throughout life in a variety of ways.

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It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.

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Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits. We are also happy to receive donations which enable the TSSS to continue to offer support to those with TS and their families.

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Living with TS

Fiona, one of our members, recently took part in a video about managing her Turner Syndrome. 

We would like to thank Fiona for assistance it is very much appreciated. She has done an excellent job we are very proud of her contribution to the project. 

We would like to thank Genetic Alliance UK for putting together this excellent project. 

Please click on this link and view the video.

Diary dates

Wed Apr 30 @ 9:00AM - 06:00PM
Angela Merry Conference
Wed Apr 30 @ 6:00PM - 09:00PM
Angela Merry Reception
Sat Jun 21 @12:00AM
Turner Syndrome Awareness Day
Sat Jun 21 @11:00AM -
London & S East Shopping in the Lanes, Brighton
Sat Jun 21 @11:00AM -
Leeds & Yorks Scarborough trip

Fundraising ideas

Click the wheel

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View the ways you can give to the TSSS

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2nd edition book

Turner Syndrome Lifelong Guidance & Support

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