Please send us your personal stories of fundraising, so that we can share them with others.
Congratulations to Tom Parkin who raised £790 for the TSSS
Over Easter, hundreds of kayakers and canoeists will pit their skill, physical and mental stamina and determination against one of the toughest endurance events in the world - the Devizes to Westminster International Canoe Marathon.
The race is 125 miles long and has 77 portages (in other words locks to run around). The 125-mile course places the highest demands on individuals and remains one of the toughest challenges in amateur sport. Blake Croxford (my kayak partner) and I have been training hard for the past year to compete in this gruelling race. this small charity that has helped my family over the last 17 years. The Turner Syndrome Support Society is a small charity run by volunteers and hence does not attract the level of donations and funding that some other charities receive.
Anna Clancy is taking part in a Bike Ride from Manchester to Blackpool on 8th July 2012 in aid of the TSSS
We are riding the Manchester to Blackpool bike ride on 8th July 2012 to raise money for TSSS in memory of Erin Clancy, who passed away in December 2011 aged 22 days. Erin had a chromosomal disorder called Turner Syndrome, which affects 1:2000 women. She was born with a congenital heart defect associated with Turner Syndrome and tragically suffered complications following the surgery to correct it.
The work that the TSSS do is so important and so valuable to women who have Turner Syndrome and their families. During pregnancy, it had often eased some of Erin's parents worries to know that she would have this community to support her. Had she survived, they were sure that through it she was going to make some great friends and receive some much needed support. To read more about our fundraising in memory of Erin, please visit the Erin's Gift blog http://erinsgift.blogspot.com/ to support Anna visit her Just Giving Page www.justgiving.co.uk/Turnersyndrome.
Hello, my name is Hannah and I decided to run in the Great North Run 2012 to raise money for the TSSS, for my younger sister, Rachel. Rachel was diagnosed with Turner Syndrome (TS) when she was a few days old, and I can't imagine what my parents went through when she was little. All I remember is that I got a little sister to play with.
When Rachel arrived into the world in April 1993, we were all to discover just how unique she was, even in Turner's syndrome circles. Rachel has mosaic TS, cleft lip and pallet and was only born with one eye. I don't think anything could have prepared us for all of that. During the first 10 years of her life, she was in hospital a lot, had numerous operations, appointments, and check-ups. It must have been a very worrying time for my parents. All I remember is that I couldn't play with her as much as I wanted to, but we made up for lost time soon enough.
I have clear memories of being taken to appointments, sitting in waiting rooms being quiet, and sitting next to her hospital bed, while she cried. When she was about 7 years old, the nurse came round with the growth hormone injection (the clicky pen as it was known). Rachel screamed so loudly; something that she has always been really good at! The nurse showed her how it was done on my Mum. Then my Mum said that I would show her how it worked. Putting on a brave face I let the lady inject me, but accidentally said "ouch" very loudly, which made Rachel scream all the more. However, we got over that hurdle and my little sister stopped being quite so little. She is now taller than my Mum.
Rachel has met many obstacles in her life and many challenges, but each time she has surprised us no end. When she was little, people used to stare at her is the street. Children would point, and ask her questions, which she didn’t answer. My parents told me, that was just the way she was born, and I took it upon myself, as a child, to put everyone who stared and pointed straight on a few things. When she went to secondary school she was bullied, was always shouting, and could throw the most impressive tantrums. Each time I was around I tried to protect her.
However, Rachel is no angel. She can be a nightmare to live with, but I wouldn't change her for the world. We are best friends. I will never forget the day I went to see her after one operation on her cleft lip and the whole side of her was swollen, black and blue. As soon as she saw me her eyes lit up and the half of her mouth that could move gave a wonderful smile. We fight like any siblings do, but we can never stay mad at each other for long.
Rachel surprises us every day. She is 18 now and has numerous difficulties; but she managed to complete 8 GCSE’s, has learnt to drive a car, went to college and has now secured her first full time job as a chef. If I think about it, there is nothing about her that I would change. Despite all her challenges she is so happy and bubbly and can light up a room. To me she is an inspiration. If she can achieve all she has, then the least thing I can do is run 13.1miles for her. When my feet start to hurt and it gets really hard to run, I’m going to be thinking of my little sister!
Please dig deep and donate to the TSSS, who do an amazing job at supporting women and girls living with Turners syndrome all over the UK. They are a small charity and can’t continue their fantastic work without the funding to do so.
Thank you, Hannah X To support Hannah visit her page on www.justgiving.co.uk/turnersyndrome
Congratulations to Duncan and Friends who have raised the incredible total of £6543.00 and still counting.
The "Team TSSS" runners are a team of 11 runners, ranging from elite athletes to elite couch-potatoes who have joined up to run the Berkhamsted half-marathon in support of the Turner Syndrome Support Society. The TSSS is a small under-funded and over-worked charity providing support/advice for girls and ladies with Turners Syndrome and their families, as well as trying to raise awareness of the condition. Thank you so much for all your hard work and dedication it is very much appreciated and is our highest total raised by a single event.
Your passion to support the society through raising awareness and vital funds never ceases to amaze us, and for which we thank you so much.
Below are a few of the many friends and families that continually through many different ways help us provide the support to girls, women and their families. Thank you for making a difference.
Hannah Brown ran the London Marathon and raised £1,451 to thank the society for all the TSSS does for Rachel
Kelly & Clinton Horton have held various fundraising events, raising over £1,900
Samina held a cake sale at work, raising a very tasty £104
Stephen Dwyer walked 127 miles in 5 days along the Leeds Liverpool Canal raising £743
Kevin Lendon raised over £1,000 and Dael Telecom raised over £1,200 by completing the 3 peaks challenge
Emma & Andy Taylor raised over £10,000 in 2014, and continuing to raise vital funds this year, the latest adventure being a cycle ride from Cheadle to Chester raising £885 and counting
The Ott family through various events have raised in excess of £5,300
The Squires family have had lots of fun raising £900 through various fundraising events.
Tracey Walters has raised £3,773 in memory of her husband James “Bungle” Walters, daddy to their gorgeous daughter who has TS
In Memory of Eve has raised over £1,400 to thank the TSSS for the support given.
Please do send us your stories, and what you have been up to, it is wonderful to hear all about them and inspirational to others.
Be Safe, have fun and thank you.