The TSSS are often asked to inform you about various research opportunities available to you. Please click on each link and read the details on each study for more information.
An opportunity to participate in research UK families ONLY please
BALANCE PROBLEMS AND TSA study is being carried out at the University of Glasgow looking at how common balance problems are in Turner Syndrome. Girls, with Turner Syndrome, aged 6-18 years are invited to take part in the research, which will involve a one-off completion of a questionnaire about their own experiences related to balance. Participants may receive as much help from a parent or guardian as they require. The questionnaire is in an online format and will be circulated on the TSSS website and social media platforms. All responses to the questionnaire will be anonymous and you will not be identifiable from the information you are asked to provide.
For more information, follow the link provided below to the participant information sheet and questionnaire.
Closing date- 13th March 2021
OESTORGEN FOR PUBERTAL INDUCTION
I am part of the European Society of Paediatric Endocrinology [ESPE] Turner Syndrome Working Group. We are looking at the availability and choice of Oestrogen for Pubertal Induction in Turner Syndrome. If you can spare 10 minutes to complete the survey, I would appreciate it. Questionnaire concerning availability of oral and transdermal estradiol, and progestogen preparations in the countries of members of the European Society for Paediatric Endocrinology: https://www.surveymonkey.com/r/RMNMY2G
TURNER SYNDROME PREGNANCY AUDIT: We are pleased to announce a UK wide audit of pregnancies in women with TS with a simple telephone questionnaire.
OESTROGEN TREATMENT: We are asking for your help in finding out what is the best oestrogen treatment for women with TS. Oestrogen treatment is recommended for women with TS (unless you have natural periods) to avoid serious long-term effects of osteoporosis and cardiovascular disease. Many women take HRT and others take the Pill but we do not know which is the best type of treatment. We are planning to run a research trial to compare the Pill and HRT.
We want the views of women with TS, whether or not they are on treatment. Please click on this link, which will take you to a short survey:
Replies are confidential, and we are very grateful for your help with research that will ensure women have the best treatment in future.
Your continued support is appreciated
Melanie Davies MA MRCP FRCOG
Consultant Gynaecologist, University College London Hospitals
TSSS Clinical Advisory Board
FACE STUDY: What is this research study?
This study is an exciting new study that aims to understand how people recognise facial emotions.
It is important to know how people process facial emotions so that we can learn how to help people who have difficulties in recognising faces.