The TSSS are often asked to inform you about various research opportunities available to you. Please click on each link and read the details on each study for more information.

An opportunity to participate in research UK families ONLY please

OESTROGEN FOR PUBERTAL INDUCTION

I am part of the European Society of Paediatric Endocrinology [ESPE] Turner Syndrome Working Group. We are looking at the availability and choice of Oestrogen for Pubertal Induction in Turner Syndrome. If you can spare 10 minutes to complete the survey, I would appreciate it. Questionnaire concerning availability of oral and transdermal estradiol, and progestogen preparations in the countries of members of the European Society for Paediatric Endocrinology: https://www.surveymonkey.com/r/RMNMY2G

TURNER SYNDROME PREGNANCY AUDIT: We are pleased to announce a UK wide audit of pregnancies in women with TS with a simple telephone questionnaire.

OESTROGEN TREATMENT: We are asking for your help in finding out what is the best oestrogen treatment for women with TS. Oestrogen treatment is recommended for women with TS (unless you have natural periods) to avoid serious long-term effects of osteoporosis and cardiovascular disease. Many women take HRT and others take the Pill but we do not know which is the best type of treatment. We are planning to run a research trial to compare the Pill and HRT.
We want the views of women with TS, whether or not they are on treatment. Please click on this link, which will take you to a short survey:
Replies are confidential, and we are very grateful for your help with research that will ensure women have the best treatment in future.
​https://nottingham.onlinesurveys.ac.uk/poi-patient-survey-final-22-nov-2018​
Your continued support is appreciated
Melanie Davies MA MRCP FRCOG
Consultant Gynaecologist, University College London Hospitals
TSSS Clinical Advisory Board