Facebook page: Turner Syndrome Support Society (UK)
Groups are on Arlene Smyth page TSSS UK MEMBER ONLY FRIENDSHIP GROUP and numerous other groups to join.
TSSS twitter account: @TurnerSyndSoc
Don’t Stop Me Now – Project Facebook Group
TSSS Twitter and Facebook Do’s and Don’ts!
Follow and Mention/tag @TurnerSyndSoc where you can and when appropriate
Help us to get #TSSSConference2016 Trending and retweet/favourite any appropriate tweets!
Ask permission before tagging and mentioning people in a tweet/photo
Be receptive to other people’s views
Use tweets to inspire, help people to know more and raise awareness of TS on behalf of the TSSS!
Do ask permission before posting a status/photos including other people on Facebook
Do use Facebook to raise awareness of Turner Syndrome, a good way is changing your cover photo or status to represent and promote the TSSS!
Do contact Arlene at the office if you have a question for her, as she doesn't always have time to check Facebook!
Do be respectful of other people's opinions, everyone is entitled to their own personal views, and social media is a good way of sharing these when used appropriately
Do check your profile is secure, and that only your friends can see what you post
There are a lot of TS groups on Facebook all are on Arlene Smyth page.
The two main ones the society has created are:
- TSSS - Turner Syndrome Support Society UK
- TSSS UK Members only friendship group - this is for members of the TSSS only
There are also a number of local friendship group pages too.
Mention/tag anyone without them knowing and agreeing
Share any personal information (address, phone numbers etc)
Don't tag anyone on Facebook without asking them first, people can always tag themselves later!
Don't share personal information on Facebook i.e. mobile numbers, addresses etc.
Use Twitter, Facebook and other social media safely to help raise awareness and show how proud we are of our brilliant charity!
|Who to tag/follow:
Celebrities to target:
Don't Stop Me Now
Below: Photographs of TSSS members sharing their everyday lives.