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0141-952 8006
Helpline
0300 111 7520

New YouTube channel

The TSSS are delighted to announce our new Turner Syndrome Support Society (UK) YouTube channel.

Our first upload is our New Animated Health Sketch by Health-Sketch.com sponsored by Pfizer Ltd.

We hope you find it informative and would really appreciate it if you would watch, share, like, tweets as much as possible.

We will continue to add more videos soon.

Thank you in advance for your support.

Facebook page: Turner Syndrome Support Society (UK)
Groups are on Arlene Smyth page TSSS UK MEMBER ONLY FRIENDSHIP GROUP and numerous other groups to join.

TSSS  twitter account: @TurnerSyndSoc
Don’t Stop Me Now – Project Facebook Group

TSSS Twitter and Facebook Do’s and Don’ts!

Do’s:
Follow and Mention/tag @TurnerSyndSoc where you can and when appropriate
Help us to get #TSSSConference2016 Trending and retweet/favourite any appropriate tweets!
Ask permission before tagging and mentioning people in a tweet/photo
Be receptive to other people’s views
Use tweets to inspire, help people to know more and raise awareness of TS on behalf of the TSSS!

Do's:
Do ask permission before posting a status/photos including other people on Facebook 
Do use Facebook to raise awareness of Turner Syndrome, a good way is changing your cover photo or status to represent and promote the TSSS! 
Do contact Arlene at the office if you have a question for her, as she doesn't always have time to check Facebook!  
Do be respectful of other people's opinions, everyone is entitled to their own personal views, and social media is a good way of sharing these when used appropriately 
Do check your profile is secure, and that only your friends can see what you post
There are a lot of TS groups on Facebook all are on Arlene Smyth page. 
The two main ones the society has created are:

  • TSSS - Turner Syndrome Support Society UK
  • TSSS UK Members only friendship group - this is for members of the TSSS only

There are also a number of local friendship group pages too. 

Don’ts:
Mention/tag anyone without them knowing and agreeing
Share any personal information (address, phone numbers etc)

Don’ts:
Don't tag anyone on Facebook without asking them first, people can always tag themselves later! 
Don't share personal information on Facebook i.e. mobile numbers, addresses etc. 
Use Twitter, Facebook and other social media safely to help raise awareness and show how proud we are of our brilliant charity!

Thank You!

TSSS Twitter

Who to tag/follow:
  • @nanopore – Oxford Nanopore
  • @Fluidigm – Fluidigm
  • @Reproductivehg – Reproductive Health Group
  • @AXYSinfo – AXYS
  • @Endo_Editor – Judith Taylor
  • @britishthyroid – British Thyroid Foundation
  • @ClinEdnoNews 
  • @EndocrineToday – Endocrine Today
  • @TheEndoSociety – The Endocrine Society
  • @EuroSPE – European Society for Paediatric Endocrinology
  • @DrNeilGittoes – Consultant Endocrinologist
  • @NHSEnglandStats – NHS England
  • @rarediseaseuk – Rare Disease UK
  • @NICEcomms – National Institute for Health and Care Excellence
  • @bmj_company – BMJ
  • @NEJM – New England Journal of Medicine
  • @CUH_NHS – Cambridge University Hospitals – Addenbrookes
  • @DxFoundation – Diagnosis Foundation
  • @NHSChoices – Official NHS Engaland
  • @ACTcharity – ACT @ Addenbrookes
  • @Pituitary_org – Pituitary Foundation
  • @Change4Life – Change for Life
  • @DiabetesUK – Diabetes UK
  • @TheBHF – British Heart Foundation
  • @TheSHCA – Specialised Healthcare Alliance
  • @CUH_Nursing
  • @hormone_doc – Helen Simpson
  • @laurahopperhops
  • @Tomhopperhops 

Celebrities to target: 

  • @MrPeterAndre
  • @MrJulesKnight
  • @meamandamealing
  • @antanddec
  • @GaryBarlow
  • @mrjakewood
  • @JimmyAkingbola
  • @RealScottMaslen
  • @McInTweet
  • @AlecNewman1
  • @tommcfly
  • @EmmaWillis

#TSSSConference2017
#TSSS17
#TurnerSyndrome

Don't Stop Me Now

Below: Photographs of TSSS members sharing their everyday lives.

TSSS

The official website of the Turner Syndrome Support Society (UK).

© Copyright Turner Syndrome Support Society 2017 Reproduction of photographs from this website is strictly forbidden

Help reduce our costs

The TSSS is a small charity and, although very happy to send out information on Turner Syndrome to all those who request it, does not have the funds to do this for free.

When requesting information please make a donation to cover the cost of photocopying and administration. Thank you.

Get In Touch

12 Simpson Court
11 South Avenue
Clydebank Business Park
Clydebank G81 2NR
0141 952 8006
0141 952 8025
turner.syndrome@tss.org.uk