Turner Syndrome – lifelong guidance and support
This book published by the TSSS and launched in 2002 covers everything you need to know about TS. It includes diagnosis, genetics, treatments, personal experiences, and other aspects of living with TS. It has been highly acclaimed by health professionals and those with TS and their families. A ‘must have book’.
Price a minimum donation of £5 to the TSSS please Overseas GBP £10 | BUY NOW
Talking About Turner Syndrome - the booklet
The booklet has been produced to accompany the video above; it includes photographs and quotes from the video and contains basic information about TS. It can also be used as a stand-alone source of basic information about the syndrome.
Price a minimum donation of £1 to the TSSS please Overseas GBP £3 | BUY NOW
Booklets
Can be downloaded free or purchased in hard copy
NEW! The Bungle Pack
Kindly supported by Tracey and Lainey Walters, in memory of Corporal James Walters (affectionately known as 'Bungle'), The Bungle Pack comprises three booklets:
Pre-natal tests and TS HARD COPY | FREE DOWNLOAD
Diagnosing TS at birth HARD COPY | FREE DOWNLOAD
Considering pregnancy? Guidance for women with TS HARD COPY | FREE DOWNLOAD
So you are considering a partnership – what does Turner Syndrome mean for us?
General information for partners.
Price a minimum donation of £1 to the TSSS please Overseas GBP £3 | BUY NOW | FREE DOWNLOAD
NEW How to help your child survive and thrive at school
This booklet is published by the Turner Syndrome Support Society (TSSS) as an aid to both parents and teachers of girls with Turner syndrome (TS).
It is not definitive, but written as a result of many shared experiences of those with TS, their parents and teachers. The booklet is intended to provide help when dealing with problems or difficulties that may be faced by girls with TS during their school years. Overseas GBP £3 | BUY NOW | FREE DOWNLOAD
Who is the woman I am less than anyway?
An information leaflet for woman who have TS, looking at self-esteem and how to improve it.
Price a minimum donation of £1 to the TSSS please Overseas GBP £3 | BUY NOW | FREE DOWNLOAD
Turner Syndrome Support Society (TSSS) Employment
An information leaflet for woman who has TS and their employers, looking at employment issues they may face at work.
Price a minimum donation of £1 to the TSSS Please Overseas GBP £3 | BUY NOW | FREE DOWNLOAD
Turner Syndrome following antenatal diagnosis – FREE DOWNLOAD
A Teenager’s Guide to Turner Syndrome
Dr Heather Stirling (Consultant Paediatrician) and Ann-Marie McKane (Community Paediatric Sister)
CURRENTLY AWAITING UPDATING
A Parent’s Guide to Turner Syndrome
CURRENTLY AWAITING UPDATING
Turner Syndrome: A Guide for Patients & Parents
CURRENTLY AWAITING UPDATING
The Turner Woman: A Patient Guide
CURRENTLY AWAITING UPDATING
Adult TS checks & Clinic information - FREE DOWNLOAD
Paediatric and Adult Health Checklist for the Management of Turner Syndrome – FREE DOWNLOAD
Diagnosing Turner Syndrome – FREE DOWNLOAD
ENT diagnosis Did you know that 80% of girls were first seen by ENT specialists before they were diagnosed with TS? FREE DOWNLOAD
Every picture tells a story, every story paints a picture
This book was the result of a children's competition run by the TSSS and supported by Pfizer.
Every picture, poem or story has been written by children on Growth Hormone treatment, they have not been edited in any way.
It gives parents and children who are about to start Growth Hormone treatment an insight into the difference it makes to children's lives.
FREE DOWNLOAD
Does your child have a genetic disorder?
A general leaflet about what to ask a geneticist when you go for Genetic Counselling. FREE DOWNLOAD
Information Factsheets
Available from the TSSS office upon request
Massage techniques (For Lymphoedema)/Skin Care Advice
Information for in-utero diagnosis – produced by Guy's & St Thomas' Hospital
To request a pack please e-mail the TSSS office This email address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Information packs
Available from the TSSS office upon request
These packs are free of charge to any hospital clinics or GP surgery they contain TSSS literature, poster, information about the TSSS and membership details. To request a pack please e-mail the TSSS office This email address is being protected from spambots. You need JavaScript enabled to view it.
Promotional items
Such as T-shirts, pens, pin badges etc - Available in our online shop.
New series of fact sheets
The TSSS is delighted to announce the availability of a new fact sheet series produced thanks to a grant from the Society of Endocrinology.
We do hope you find the fact sheets helpful.
The fact sheets are also available in hardcopy from the TSSS office for a donation to cover P&P.
- Factsheet 1: Pubertal induction DOWNLOAD FREE | BUY NOW
- Factsheet 2: Practical tips for pubertal induction DOWNLOAD FREE | BUY NOW
- Factsheet 3: Footwear and foot care advice for girls DOWNLOAD FREE | BUY NOW
- Factsheet 4: Footwear and foot care advice for women DOWNLOAD FREE | BUY NOW
- Factsheet 5: Spatial awareness DOWNLOAD FREE | BUY NOW
- Factsheet 6: Disclosure DOWNLOAD FREE | BUY NOW
- Factsheet 7: Top tips on coping with tiredness DOWNLOAD FREE | BUY NOW
- Factsheet 8: Problems with feeding DOWNLOAD FREE | BUY NOW
- Factsheet 9: Speech and language problems DOWNLOAD FREE | BUY NOW
- Factsheet 10: Genetic counselling DOWNLOAD FREE | BUY NOW
- Factsheer 11: Pubertal induction DOWNLOAD FREE | BUY NOW
- Factsheet 14: Driving with Turner Syndrome DOWNLOAD FREE | BUY NOW