Genetic Disorders UK and the team at Net mums www.netmums.com, the UK’s fastest-growing online parenting organisation, are carrying out research with parents of children who have a genetic disorder to gauge how supported and connected they feel.
The results gathered will be made public in the national media in the lead-up to Jeans for Genes Day to help raise awareness for families affected by genetic disorders.
We know you have a lot on your plate but we would really like as many families with a genetic disorder or disability to take part in this survey and it won’t take more than a few minutes to complete. You will find the survey at: www.surveymonkey.com/s/youandyourchild