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Genetic Disorders UK and the team at Net mums www.netmums.com, the UK’s fastest-growing online parenting organisation, are carrying out research with parents of children who have a genetic disorder to gauge how supported and connected they feel.

The results gathered will be made public in the national media in the lead-up to Jeans for Genes Day to help raise awareness for families affected by genetic disorders.

We know you have a lot on your plate but we would really like as many families with a genetic disorder or disability to take part in this survey and it won’t take more than a few minutes to complete. You will find the survey at: www.surveymonkey.com/s/youandyourchild


The official website of the Turner Syndrome Support Society (UK).

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The TSSS is a small charity and, although very happy to send out information on Turner Syndrome to all those who request it, does not have the funds to do this for free.

When requesting information please make a donation to cover the cost of photocopying and administration. Thank you.

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