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A person sitting at a table  Description automatically generated with medium confidenceTURNER SYNDROME TALK AND TEA TSSS UK PODCAST



We are delighted to announce, due to the incredible success of “Turner Syndrome, Talk and Tea “podcast that Emily has been so inspirational in setting up. Emily has kindly agreed to continue it and develop it for the TSSS UK via our website and across our social media platforms. We are so excited so, watch this space for more information on how to take part, suggest topics for the future. Emily will continue to conduct the interviews and plan and develop the podcast. We hope it will reach a wider audience through the Society.

I am Emily Seymour and was diagnosed with Turners at 9 months old and think I was very fortunate to have had such an early diagnosis. I have been going to conference since I was about 14. Everyone always says it, but it really is such a special weekend, and I totally agree! I have done a few fundraisers for the society, one of them being swimming 100 lengths of a 25m pool - and I am currently in the middle of training for my next challenge, which is 200 lengths, which takes up a lot of my spare time! When not swimming and doing podcasts, I work in a care home for the elderly which I really love, and I have worked there since I was 18. The stories you get from the residents are second to none and the job is hard but very rewarding. 

In July I launched my very own podcast called “Turner Syndrome, Talk and Tea”. On my podcast I have guests talking about their experience of Turner Syndrome. This is not just for girls with Turners, as I have had sibling perspective, parents perceptive as well as the ladies and girls with Turners. I generally have a set group of questions for the podcast, which I think makes it easier for guests to be more prepared and comfortable as they know what’s coming. Starting my podcast has been one of the best things I have ever done, there is such power in conversation-I am hoping through talking it will help other people/families to have an understanding, for them to get a glimpse of day-to-day life as well as the medical side. I am always looking for more people to be on my podcast from all perspectives, so if you are interested then please contact me at @turnersyndrometalkandtea on Instagram. Or my Facebook is Emily Seymour or email me on This email address is being protected from spambots. You need JavaScript enabled to view it..uk 

I am honoured to be one of your social media reps, I will try my hardest to be tech savvy - my podcast experience will hopefully help!  🙈
The society is so proud of Emily, and we were so impressed with all her hard work and professionalism. We invited Emily to join our social media committee. We are so excited to have Emily join us. She will work with us to help us to develop our social media across many platforms.

Facebook page: Turner Syndrome Support Society (UK)
Groups are on Arlene Smyth page TSSS UK MEMBER ONLY FRIENDSHIP GROUP and numerous other groups to join.

TSSS  twitter account: @TurnerSyndSoc
Don’t Stop Me Now – Project Facebook Group

TSSS Twitter and Facebook Do’s and Don’ts!

Follow and Mention/tag @TurnerSyndSoc where you can and when appropriate
Help us to get #TSSSConference2016 Trending and retweet/favourite any appropriate tweets!
Ask permission before tagging and mentioning people in a tweet/photo
Be receptive to other people’s views
Use tweets to inspire, help people to know more and raise awareness of TS on behalf of the TSSS!

Do ask permission before posting a status/photos including other people on Facebook 
Do use Facebook to raise awareness of Turner Syndrome, a good way is changing your cover photo or status to represent and promote the TSSS! 
Do contact Arlene at the office if you have a question for her, as she doesn't always have time to check Facebook!  
Do be respectful of other people's opinions, everyone is entitled to their own personal views, and social media is a good way of sharing these when used appropriately 
Do check your profile is secure, and that only your friends can see what you post
There are a lot of TS groups on Facebook all are on Arlene Smyth page. 
The two main ones the society has created are:

  • TSSS - Turner Syndrome Support Society UK
  • TSSS UK Members only friendship group - this is for members of the TSSS only

There are also a number of local friendship group pages too. 

Mention/tag anyone without them knowing and agreeing
Share any personal information (address, phone numbers etc)

Don't tag anyone on Facebook without asking them first, people can always tag themselves later! 
Don't share personal information on Facebook i.e. mobile numbers, addresses etc. 
Use Twitter, Facebook and other social media safely to help raise awareness and show how proud we are of our brilliant charity!

Thank You!

TSSS Twitter

Who to tag/follow:
  • @nanopore – Oxford Nanopore
  • @Fluidigm – Fluidigm
  • @Reproductivehg – Reproductive Health Group
  • @AXYSinfo – AXYS
  • @Endo_Editor – Judith Taylor
  • @britishthyroid – British Thyroid Foundation
  • @ClinEdnoNews 
  • @EndocrineToday – Endocrine Today
  • @TheEndoSociety – The Endocrine Society
  • @EuroSPE – European Society for Paediatric Endocrinology
  • @DrNeilGittoes – Consultant Endocrinologist
  • @NHSEnglandStats – NHS England
  • @rarediseaseuk – Rare Disease UK
  • @NICEcomms – National Institute for Health and Care Excellence
  • @bmj_company – BMJ
  • @NEJM – New England Journal of Medicine
  • @CUH_NHS – Cambridge University Hospitals – Addenbrookes
  • @DxFoundation – Diagnosis Foundation
  • @NHSChoices – Official NHS Engaland
  • @ACTcharity – ACT @ Addenbrookes
  • @Pituitary_org – Pituitary Foundation
  • @Change4Life – Change for Life
  • @DiabetesUK – Diabetes UK
  • @TheBHF – British Heart Foundation
  • @TheSHCA – Specialised Healthcare Alliance
  • @CUH_Nursing
  • @hormone_doc – Helen Simpson
  • @laurahopperhops
  • @Tomhopperhops 

Celebrities to target: 

  • @MrPeterAndre
  • @MrJulesKnight
  • @meamandamealing
  • @antanddec
  • @GaryBarlow
  • @mrjakewood
  • @JimmyAkingbola
  • @RealScottMaslen
  • @McInTweet
  • @AlecNewman1
  • @tommcfly
  • @EmmaWillis


The official website of the Turner Syndrome Support Society (UK).

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The TSSS is a small charity and, although very happy to send out information on Turner Syndrome to all those who request it, does not have the funds to do this for free.

When requesting information please make a donation to cover the cost of photocopying and administration. Thank you.

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