A fantastic afternoon was had by all at the recent South Wales Friendship Group's Christmas party! Santa even put in an appearance.
A massive thanks must go to Richard and Cathryn Jones for all their hard work in arranging the party. Here's to next year!
Carol Fraser, Paedoratic Endocrine Specialist Nurse very kindly organised a room for us in Neath Port-Talbot Hospital for a meet up of the South Wales Friendship Group. Getting a group together is something that she has been wanting to do for some years.
She is very aware that some mothers of girls with Turner Syndrome are helped by having a specialist nurse co-ordinate the management of their daughters care. This, along with sharing experiences, can put them at an advantage to those who haven't had this. It was a very successful meeting with 16 in attendance. The girls enjoyed the 'nail bar' that had been set up whilst the adults swapped stories and put the worlds to right.
We enjoyed a lovely lunch at the hospital canteen, giving the adults the opportunity to continue chatting. We came away having agreed on trying to put together a Christmas party so that we continue to excellent start to this new group. We set up a what'sapp group so that we can keep in touch with each-other and how the arrangements are going.
On Sunday 23rd July the South Wales Group met for the very first time!
Kathryn and Richard very kindly hosted the first South Wales friendship group meet up at their home in Porthcawl. Two other families along with Emma and myself came together and enjoyed a lovely spread of warm baguettes, cakes, crisps, scones and lots of cake that Kathryn had put together. We sat chatting over tea and this lovely spread whilst the girls played together outside on the trampoline.
It was a great informal get together enabling us to talk about the next meeting and the way forward of this group - watch this space!