Welcome to the TSSS
The Society provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly.
What is Turner Syndrome?
The following description of Turner Syndrome (TS) and explanation of some of the issues involved in living with the condition is not definitive and a doctor or endocrine specialist should always be consulted whenever a diagnosis of TS has been given.Living with Turner Syndrome
It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.Treatment for TS
There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs. TS is a ‘cradle to grave’ condition and as such should be treated throughout life in a variety of ways.How to join or donate
Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits. We are also happy to receive donations which enable the TSSS to continue to offer support to those with TS and their families.
Diary dates
| 21 Jun 2019 TS Awareness Day |
| 22 Jun 2019 11:00AM - 04:00PM Sheffield open day |
| 06 Jul 2019 East Midlands meet-up |
| 11 Oct 2019 Annual conference |
| 02 Nov 2019 11:00AM - 04:00PM Oxford seminar day |
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We now have 24 friendship groups around the UK and Ireland. For information about friendship groups and their activities please… -
To continue the level of support to members we are asking for your help with donations. -
The TSSS is delighted to announce the launch of a new website and social media campaign called “Missing an X”…
News from the TSSS
Easy fundraising
Collect free donations for TSSS every time you shop
It doesn't cost you a penny extra.
When you shop the easyfundraising way with one of our 3,135 shops and sites they give us a commission for your purchase. We turn that into a donation and give it to the TSSS. Easy!
Help with our research
TURNER SYDROME PREGNANCY AUDIT: Women with Turner Syndrome who have been pregnant - we need your help!
TURNER SYNDROME BREAST STUDY: World-wide online questionnaire-based study on Body Image and Breast Satisfaction in Women with Turner Syndrome.
SOAR STUDY: We would like to invite you and your daughter to join the SOAR study!
SPOT PROJECT: What is the SPOT study? The SPOT study aims to develop a new way of evaluating people’s social skills.