Welcome to the TSSS
The Society provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly.
What is Turner Syndrome?
The following description of Turner Syndrome (TS) and explanation of some of the issues involved in living with the condition is not definitive and a doctor or endocrine specialist should always be consulted whenever a diagnosis of TS has been given.Living with Turner Syndrome
It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.Treatment for TS
There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs. TS is a ‘cradle to grave’ condition and as such should be treated throughout life in a variety of ways.How to join or donate
Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits. We are also happy to receive donations which enable the TSSS to continue to offer support to those with TS and their families.
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We now have 26 friendship groups around the UK and Ireland. For information about friendship groups and their activities please… -
To continue the level of support to members we are asking for your help with donations. -
The TSSS is delighted to announce the launch of a new website and social media campaign called “Missing an X”…
News from the TSSS
Easy fundraising
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Help with our research
OESTROGEN FOR PUBERTAL INDUCTION
We are looking at the availability and choice of Oestrogen for Pubertal Induction in Turner Syndrome.
TURNER SYNDROME PREGNANCY AUDIT: We are pleased to announce a UK wide audit of pregnancies in women with TS with a simple telephone questionnaire.
OESTROGEN TREATMENT: We are asking for your help in finding out what is the best oestrogen treatment for women with TS.
FACE STUDY: An exciting new study that aims to understand how people recognise facial emotions.