The Turner Syndrome Support Society [TSSS] is run by a small team of one full-time and one part-time member of staff.

Arlene Smyth is the Executive Officer and founding member of the TSSS, she has an adult daughter with TS who was diagnosed at birth and has a great deal of knowledge and experience to share with you. Carlene Connor is our Admin Assist and has a sister with TS and able to help you, through her own experiences too. We also have a wonderful team of volunteers all closely involved with Turner Syndrome [TS].

We offer free information and support to anyone with TS their friends or their family.  We can be contacted by phone, e-mail, letter, through our website and social media. Membership is not compulsory but does allow you to attend our national conference and access our UK wide members contact network. Your data is protected under our GDPR policy and treated with the strictest confidence. We never have and never would sell or allow a third-party access to your data. If you give us express permission to be part of the UK wide members contact network, you will be added.

To ensure joining is quick and easy to do, you can join in the following ways. Membership is due on the 1st of June each year if paying annually or at any time when paying monthly. Joining the TSSS costs just £35 per year by cheque or postal order, to be posted to the TSSS office. A discounted price of £30 per year or £2.50 per month by Direct Debit Online. This is our preferred method as it is quick for you and helps reduce our administration.

Or by Standing Order costs just £30 per year or £2.50 per month you need to download the form and set it up with your bank, then please notify us the date you have set it up for. Membership can be cancelled at any point by contacting the TSSS office.

Joining enables the TSSS to continue to offer support to others and to increase awareness and knowledge about Turner Syndrome throughout the UK. Being part of the TSSS community offers friendship, support, and information throughout the UK.