Collaborating for better understanding of heart and fertility risks in TS
Friday 7 March 2025
at Golden Jubilee Conference Hotel, Beardmore Street. Clydebank, Glasgow, G81 4SA
An Education Day open to all Healthcare Professionals involved in the care of girls or women with Turner Syndrome [TS].
The Turner Syndrome Support Society [UK] is proud to be hosting this event. This is a day that was planned for the 10th Turner Syndrome International Conference [TSI2020], but it had to be cancelled because of the pandemic.
The theme for this Education Day is Collaborating for better understanding of heart and fertility risks in TS.
All too often, we hear about girls and ladies with TS having to make choices regarding heart care, treatment, and surgery. This can often have implications for their fertility options. the girls, ladies, and their families must make complex decisions affecting their future health. Both healthcare professionals and families want the best for their patients. We thought bringing you together to discuss the latest research findings and clinic experiences from different countries would be beneficial. We wanted to provide an opportunity for Health Care Professionals to come together to share their knowledge and expertise. We will have expert panel discussions, with Prof Melanie Davies, Gynaecology, Dr Helen Turner, Endocrinology, Prof Anne Shakkebaek (Denmark) Genetic, Cardiac and Fertility teams from Glasgow, London and Denmark, and many more, plus short presentations and poster presentations. This an open invitation to any Health Care professional interested in TS to attend as a delegate and take part in discussions. Please share this invitation but be aware that places are limited. A full-day education programme.
An opportunity to submit a 10-minute oral presentation and/or a poster. A rare opportunity to meet colleagues with TS specialist knowledge and to share and hear personal stories from individuals who have TS.The cost is £75 per person or Online Hybrid £50.
Booking is available until 5 March 2025.
Oral & Poster Presentation Submissions to This email address is being protected from spambots. You need JavaScript enabled to view it. by 28 February 2025.
This is a rare opportunity to have a Turner Syndrome [TS] Education Day, with top medical experts in TS from across Europe. All healthcare professionals interested in TS are welcome to attend.
PROGRAMME
| TIME | TITLE | SPEAKER |
| 09:00 - 09:30 | Arrival refreshments in the Central Plaza and Registration Arcoona1 | |
| 09:30 - 09:40 | Introduction and Information | Arlene Smyth – Executive Officer TSSS UK |
| 09:40 - 09:50 | Welcome | Prof Melanie Davies – Patron TSSS UK |
|
Morning Speakers: Prof Melanie Davies, Ass Prof Anne Shakkebaek, Dr Helen Turner, Dr Liz Orchard, Sr Emma Weingart, Mr Ed Peng, Dr Amanda Hunter, Mrs Caroline Marquis and Mrs Courtnay Cauldwell |
||
|
Adult Session 1 – Adult Cardiac Care, Adult Experts share their knowledge on adult care, BP and Cardiac management, followed by discussion on risks, benefits and complications. |
||
| 09:50 - 10:00 | International guidelines update on Bp and Cardiac care | Dr Helen Turner |
| 10:00 - 10:10 | Care and treatment when to operate, aortic risk in a TS patient | Dr Amanda Hunter (Glasgow) |
| 10:10 - 10:20 | Surgery what’s involved and possible complications specific to TS. | Dr Ed Peng (Glasgow) |
| 10:20 - 10:30 | Personal experience of recent valve replacement surgery. | Mrs Caroline Marquis |
| 10:30 - 10:40 | Morning Refreshments in the Central Plazza | |
| 10:40 - 10:50 | Genetic aspects in cardiovascular disease in TS | Ass Prof Anne Shakkebaek (Denmark) |
| 10:50 - 11:00 | Care and treatment of BP, aortic risk in a TS patient | Dr Liz Orchard (Oxford) |
| 11:00 - 11.30 | Questions, discussions on risks, benefits, complications and research needs. | Dr Helen Turner (Oxford) |
|
Adult Session 2- Pregnancy and fertility perseveration, an update on international access to fertility preservation and options on pregnancy care, followed by discussion on risks, benefits and complications. |
||
| 11:30 - 11:40 | International Guidelines Update of fertility | Prof Melanie Davies |
| 11:40 - 11:50 | Experience form largest TS clinic, hopes for the future, risks and complications. | Prof Melanie Davies (London) |
| 12:00 - 12:30 | Questions, discussions on risks, benefits, complications and research needs. | Prof Melanie Davies (London) |
| 12:30 - 13:30 | Lunch in the Beardmore | |
|
Afternoon Speakers: Dr Tony Hulse, Dr Caroline Brain, Dr Alene Shantsila, Dr Aparna Astry, Prof Melanie Davies, Mrs Val Reid and Miss Kacey Reid. |
||
|
Paediatric Session 1 – Paediatric cardiac experts will share their knowledge on what to look for to diagnose and treat BP and cardiac care in TS early. How to prepare families on risks. Followed by discussions on risks, benefits and complications. |
||
| 14:00 - 14:10 | How to monitor and improve cardiovascular health in paediatric TS. | Dr Alene (Helen) Shantsila (Liverpool) |
| 14:10 - 14:20 | Cardiac care within TS paediatric clinics. | Dr Caroline Brain (London) |
| 14:20 - 14:30 | Self-care in patient with TS BP monitoring, health and wellbeing, cardiac alert card. |
Sr Emma Weingart (Oxford) |
| 14:30 - 15:00 | Questions, discussions on risks, benefits, complications and research needs. |
Dr Tony Hulse (London) |
| 15:00 - 15:30 | Afternoon refreshments in the Central Plazza | |
|
Paediatric session 2 – Optimal induction of puberty will be discussed, along with the impact on potential fertility. There will be a discussion on current treatment options and the prognosis for girls with TS now and in the future on risks, benefits and complications. |
||
| 15:30 - 15:40 | Optimum pubertal induction in TS | Dr Caroline Brain (London) |
| 15:40 - 15:50 | Transition to adult care | Dr Aparna Sastry (Glasgow) |
| 15:50 - 16:00 | Egg and ovary preservation the future | Prof Melanie Davies (London) |
| 16:00 - 16.10 | Patient experience | Val and Kacey Reid |
| 16:10 - 16:40 | Questions, discussions on risks, benefits, complications and research needs. |
Prof Melanie Davies (London) |
| 16:40 - 17:10 | Summary and actions from the day. | Prof Melanie Davies and Dr Tony Hulse |
| 17:10 - 17: 20 | Thank you | Arlene Smyth |
| 17:20 - 17:30 | Closing remarks | Dr Tony Hulse |